Christmas was great. It was really, really great. Nate was sick and sad but still managed to smile and be happy most of the time. Years ago my brother Marcus and his wife Jenny were snowed in and could not fly in for Christmas Eve. The spent the night with their two girls, ages 1 and 2 I think, filming their version of the Nativity story.
It was cute and charming. Since then they have made A Christmas Carol and this year Nate helped film How the Grinch Stole Christmas. Jenny did the filming and I did the editing.
Saturday, December 25, 2010
Sunday, December 12, 2010
3 days more
Nate spent another 3 days this week in the hospital. We took him in for his normal check up on Monday and the doctor freaked out about his low weight and sent us to the hospital. The low weight is concerning, her reaction was just as concerning. We spent 3 days in the hospital and no one really knew why, including most of the doctors and nurses.
Nate has a deadline. If he cannot show that he can gain weight by the 21 then he will be admitted to the hospital and receive a temporary feeding tube. A few weeks later they will surgically implant a feeding tube directly into his tummy....I mean stomach. I feel like there is a countdown above our heads and it makes enjoying the season a little difficult. If anyone would like to help, feel free to send food. Nate likes mountain dew and doritos.
On the bright side Nate is wonderful. He loves to push himself backwards. Sometimes he disappears and we find that he has pushed himself backwards into the closet or under the bed.
For example; here is Nate pushing himself under the bed. He got so far under he couldn't push back anymore.
Nate has a deadline. If he cannot show that he can gain weight by the 21 then he will be admitted to the hospital and receive a temporary feeding tube. A few weeks later they will surgically implant a feeding tube directly into his tummy....I mean stomach. I feel like there is a countdown above our heads and it makes enjoying the season a little difficult. If anyone would like to help, feel free to send food. Nate likes mountain dew and doritos.
On the bright side Nate is wonderful. He loves to push himself backwards. Sometimes he disappears and we find that he has pushed himself backwards into the closet or under the bed.
For example; here is Nate pushing himself under the bed. He got so far under he couldn't push back anymore.
Sunday, December 5, 2010
Thursday, December 2, 2010
Disneyland
We went to Disneyland this week. It was an early Christmas present and a quick trip. One day to drive there, one day at the park and then back the next day. There were only two drawbacks; Nate couldn't go to the park with us and Nate had to sit in a car seat for 6-7 hours.....twice. Lets take a photo tour.
After hours of being stuck in the car seat Nate was so happy to get out and play in the back seat for a little while as we sat parked in a gas station parking lot. A sad little boy became the happiest boy on the planet.
Until we told him there were still 2 more hours of driving.
There were many sections of the park that were really well decorated. Especially the "Its a Small World Ride". The creepy lifeless dolls seemed to frighten less and entertain more as they sang Christmas carols instead of pounding "its a small world" into your weakening psyche.
I cannot understand what the appeal is in that ride. Its like watching Chucky come to life.
On this trip though, Annie and I took a ride on the Disneyland train for the first time ever. Best decision we ever made, yes I mean that. Not only did we ride around the park but we got to take a very weird trip to the prehistoric Grand Canyon.
Nate was so excited to head home that his whole mouth and tongue went numb.
Nate was such a good boy that I let him drive for a little bit. There was an.... incident. Mistakes were made and now we know not to let Nate drive. So, all-in-all it was a good thing, a learning experience.
After hours of being stuck in the car seat Nate was so happy to get out and play in the back seat for a little while as we sat parked in a gas station parking lot. A sad little boy became the happiest boy on the planet.
Until we told him there were still 2 more hours of driving.
There were many sections of the park that were really well decorated. Especially the "Its a Small World Ride". The creepy lifeless dolls seemed to frighten less and entertain more as they sang Christmas carols instead of pounding "its a small world" into your weakening psyche.
I cannot understand what the appeal is in that ride. Its like watching Chucky come to life.
On this trip though, Annie and I took a ride on the Disneyland train for the first time ever. Best decision we ever made, yes I mean that. Not only did we ride around the park but we got to take a very weird trip to the prehistoric Grand Canyon.
Nate was so excited to head home that his whole mouth and tongue went numb.
Nate was such a good boy that I let him drive for a little bit. There was an.... incident. Mistakes were made and now we know not to let Nate drive. So, all-in-all it was a good thing, a learning experience.
Monday, November 15, 2010
Nate Loves Apples
We've discovered Nate loves to munch on apples. The video is kind of long cause I didn't want to have to chop it up. So soak in the minute or two of Nate and apple.
Monday, November 8, 2010
Surgery
As most of you know Nate had surgery about two weeks ago. What most of you don't know is that along with fixing his diaphragm they also extracted his soul, which took several days to return. After the surgery Nate was a zombie, which is great for zombie lovers. Annie is not a zombie lover. Occasionally he would open his eyes and stare. Annie and I would smile at him and try to get his attention but he would just stare blankly. It was very unnerving.
You can't see his surgery cuts but you can see the chest tube. For those of you who don't know, chest tubes were created by Satan with the specific purpose of killing happiness. Nate had to have this in him for days and it was painful and very uncomfortable. He didn't have a good sleep nor could he be off of morphine until they took this out. The tube went into his lung lining and pumped out air and fluids that were caught in there. It was miserable.
He was doped up and for the first hour so when they brought him out of surgery. He looked as you see in the picture except he had a breathing tune in his mouth. The breathing tube was supposed to be extracted by a doctor or nurse when he started to wake up. You think in the intensive care unit there would have been a doctor or nurse around. There wasn't so as Nate started waking up he started to gag on the thing and yanked it out himself. A wonderful bit of defiance that I was happy to see.
All of the wires and tubes are either in him or connected to him in some way. He struggled and whined as the anesthesia war off. The only way we could calm him down and keep him from ripping things out was by lashing his hands to the bed. I didn't like that so I held him and he calmed down and fell back asleep. It was a very sad moment.
After days of problem after problem Nate finally began to stabilize and he came out of the stupor. He wasn't completely back to normal but it was a huge difference and we were happy. That is until they told us the surgery might not have worked and his breathing still had problems because his lungs were crushed. It took another 5 days to work that out.
You can't see his surgery cuts but you can see the chest tube. For those of you who don't know, chest tubes were created by Satan with the specific purpose of killing happiness. Nate had to have this in him for days and it was painful and very uncomfortable. He didn't have a good sleep nor could he be off of morphine until they took this out. The tube went into his lung lining and pumped out air and fluids that were caught in there. It was miserable.
He was doped up and for the first hour so when they brought him out of surgery. He looked as you see in the picture except he had a breathing tune in his mouth. The breathing tube was supposed to be extracted by a doctor or nurse when he started to wake up. You think in the intensive care unit there would have been a doctor or nurse around. There wasn't so as Nate started waking up he started to gag on the thing and yanked it out himself. A wonderful bit of defiance that I was happy to see.
All of the wires and tubes are either in him or connected to him in some way. He struggled and whined as the anesthesia war off. The only way we could calm him down and keep him from ripping things out was by lashing his hands to the bed. I didn't like that so I held him and he calmed down and fell back asleep. It was a very sad moment.
After days of problem after problem Nate finally began to stabilize and he came out of the stupor. He wasn't completely back to normal but it was a huge difference and we were happy. That is until they told us the surgery might not have worked and his breathing still had problems because his lungs were crushed. It took another 5 days to work that out.
Wednesday, November 3, 2010
Out of the Hospital
We were finally discharged from the hospital yesterday and Nate is doing pretty good. But before we discuss the details, maybe on of the cutest videos ever. Nate loves clementines. I've never seen him try so hard to get something in his mouth before. I almost lost a hand.
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