Sunday, August 28, 2011

9 Days

Nate loves to sit on the balcony and watch the cars go by our apartment. I think what Nate likes most about them is that they move. Something he does not.

Every night we have a routine. For awhile there Annie and I were so tired we would do all the maintenance things we needed to do to Nate then put him in bed. Venting his tube, changing his diaper, getting his night time meal ready, suction his trach, attach his oxygen monitor, plug in his vent and humidifier and put his hand splint on. We decided it would be better to make bed time more happy.

Nate has a friend. He's called "Bunny" and while we don't trust him Nate seems to like him, a lot. More than us actually. He got him during the pneumonia stay of 2011 and they've been great friends ever since. After putting him in bed we'll give him Bunny and Nate will go bananas kissing him and hugging him.

Before that though we sing a song, usually a primary hymn. Nate's favorite seems to be Give Said the Little Stream. After that one of us says a prayer. Recently Nate has begun folding his arms when we start to pray. Tonight, as soon as I said: "Nate, its night night time", he folded his arms ready for the prayer. This is Nate trying to fold his arms with his hand splint on:

Oh, and here is Nate being dorbes.

Thursday, August 18, 2011

Near Life Experience

In the time since the last entry Nate has come close to death taken to the hospital where he received a tracheostomy was sent home, almost died, went back to the hospital, came home again had another event, went back to the hospital and is finally home again today. I'm not going to bother to check the grammar in that sentence.

Nathaniel has been a real trooper though. He has remained cheerful albeit smelly. There are all sorts of things that come with a trach that they don't tell you before hand. Nate needs an over night nurse as long as he has the trach. The trach can get plugged and suffocate him, we always need to carry a suction with us to suction gross liquids from his trach and his trach is attached with cloth wrapped around his neck, so its not too sophisticated and can get gross.

He seems to be happier then ever though. This is Nate being floppy. Lately he thinks its really fun to fall over.